Wednesday, June 13, 2012

Thank you 1Mind4Research

 The EDC is glad to be connected with One Mind for Research. Here are some highlights from their 1st Annual Meeting of the One Mind for Research Campaign.

Today, One Mind for Research issued a release to announce the highlights from its 1st Annual Meeting of the One Mind for Research Campaign: Curing Brain Disease. The energy and emotion of the conference, which was focused on advancing brain research, anti-stigma advocacy and mental health policy are captured in video highlights. A complete collection of videos from the meeting will be available later this month.

1st Annual Meeting of the One Mind for Research Campaign: Curing Brain Disease

June 6, 2012, Rutherford, CA – One Mind for Research completed its 1st Annual Meeting of the One Mind for Research Campaign: Curing Brain Disease on May 23-25, 2012 at the University of California, Los Angeles, firmly establishing itself as a leader in brain research, anti-stigma advocacy and mental health policy.

The conference was welcomed by Los Angeles Mayor Antonio Villaraigosa and UCLA Chancellor Gene Block and featured over 350 of the world’s leading scientists and researchers in a discussion of how to accelerate the next generation of innovative neuroscience discoveries. A video recap of the conference is available online at beginning today. Complete videos of all of the presentations during the three-day event will be available soon.

The 2nd Annual One Mind for Research meeting will take place at Johns Hopkins University in Baltimore, Maryland. Tentative dates are May 21 -23, 2013.

Highlights of the 2012 conference, among many, included FasterCures chairman Michael Milken’s presentation on the bioscience revolution, noting that the cost of sequencing a genome has been reduced from millions of dollars to $1000, advancing the opportunities for genetic therapies.

Robert Klein, president of Klein Financial Corporation and author of California Proposition 71, the California Stem Cell and Cures $3 billion ballot initiative, presented an inspirational outline on the opportunities for innovative global research funding.

Michael Thompson of PricewaterhouseCoopers presented initial estimates of a study funded by One Mind on the costs of brain disease in the United States. Preliminary studies find costs approaching $1 trillion in 2012 alone. The final report is expected within weeks.

Patrick Kennedy inspired the attendees with his call to action for the Healthcare Parity Campaign and Emmy, Golden Globe and Tony Award winning actress Glenn Close chaired a panel on the science of stigma.

Among the keynote moments of the 2012 meeting was the presentation of the One Mind for Research TBI/PTS Knowledge Integration Network by Dr. Geoff Manley, UCSF. The TBI/PTS KIN is a digital environment for multiple-source data sharing, with open analysis tools, and tracking systems for working with complex data for those involved in the areas of TBI and PTS. This system will foster an open science approach among academia, industry, non-profits and governments, to remove the barriers to effective scientific and clinical research that will increase collaboration, and speed diagnosis and treatment on an unprecedented level.

Emphasizing the dire need for quick and efficient research and treatment of TBI/PTS was Sergeant First Class Victor L. Medina and his wife, Roxana Delgado, who gave a touching account of his experiences dealing with this critical issue facing our returning veterans.

“During the past year, we have made enormous strides in building our team of partners to take on this emerging national and international challenge,” stated One Mind CEO General Peter W. Chiarelli, U.S. Army (Retired). “This conference brings together an international coalition of renowned neuroscientists, policy makers and advocates, all striving to end brain-related illnesses in our lifetime.”

“The United States is facing a growing burden as a result of brain diseases,” added Garen Staglin, co-founder of One Mind for Research. “At this 1st annual conference we have reported on our progress toward cures and presented for the first time an independent study of what it costs our country in economic terms. We hope our findings will stimulate new donors and investment for research.”

One Mind for Research defined the first global scientific roadmap required for curing diseases of the brain within 10 years at last year’s launch conference held in Boston. From that roadmap, and in conjunction with its partners, One Mind is introducing a major program that address traumatic brain injury (TBI) and post-traumatic stress (PTS) that will be the first of many aimed at One Mind’s vision of a world free of brain disease. These efforts are prototype programs to dramatically improve treatments for TBI and PTS patients while also establishing broad collaborations within the neuroscience community.  Other projects are underway for Multiple Sclerosis (MS) and Alzheimer’s disease.

For more information on One Mind for Research, and the 1st Annual Meeting of the One Mind for Research Campaign: Curing Brain Disease, please visit

About One Mind for Research
One Mind for Research is an independent, non-profit organization that is committed to curing diseases of the brain and eliminating the stigma and discrimination they cause. Through collaboration with partners in science, advocacy and corporations, One Mind for Research is working to advance a 10-year plan to cure the diseases of the brain by creating change in the way scientists, health care professionals, NGO and government partners think about and conduct scientific and translational research, and by advancing mental health related public policy.

About Brain Disease
Brain diseases are the number 1 cause of adult disability globally, afflicting, in some form, 1 out of every 3 people. For example, among the psychiatric diseases (i.e. mental illnesses), major depressive disorder leads in prevalence, disabling about 5% of the population to some degree in any given year. Among veterans returning stateside from service in Iraq, 300,000 are estimated to have TBI and/or PTS, adding to the total estimate of 1.5 million Americans living with these diseases. Beyond the emotional pain endured by these individuals and their families, the total lifetime treatment cost for these individuals calculates to about $3.3 trillion. This and the cost of dementia care for our nations’ growing elder population ($400 billion annually now, to triple by 2050) will soon prove beyond the ability of the U.S. economy to sustain—unless neuroscience starts an emergency pace, right now. At a time of decreasing government research funding and pharmaceutical industry’s widespread withdrawal from psychiatric drug R&D, this cause needs public support now to develop the preventions and cures that will protect the brain health of people worldwide.

Media Contact:
Fuller & Sander Communications
Tom Fuller, 707-253-0868,
Monty Sander, 707-253-8503

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