Tuesday, July 31, 2012

The EDC was invited to be a guest blog for Disruptive Women: Are anti-obesity efforts causing body image problems in kids?

Written By : Jeanine C. Cogan, Ph.D. on July 31, 2012

The Eating Disorders Coalition for Research, Policy & Action (EDC) is a non-profit organization working to advance the federal recognition of eating disorders as a public health priority.  Through education, lobbying and advocacy efforts we promote policies that address the problems faced by people with eating disorders, and that may prevent further people from developing eating disorders. We are a coalition of more than 35 organizations in the eating disorders education, prevention and treatment communities and represent millions of people impacted by eating disorders and their families, providers, researchers and advocates.  In this article we highlight two efforts currently underway.

Challenging Anti-Obesity Efforts

Anti-obesity efforts such as the one initiated by Michelle Obama, while often well-intentioned, are causing harm. A report published January 24, 2012 in Science Daily from the C.S. Mott Children’s Hospital National Poll on Children’s Health examines the association between school-based childhood obesity prevention programs and an increase in eating disorder symptoms among children.  The poll asked parents about obesity prevention programs in their children’s schools and about food-related behaviors and activity that may be worrisome.  Since the implementation of an obesity prevention program in the schools 30% of parents report at least one worrisome behavior in their children that could be associated with the development of eating disorders.  Additionally, 7 percent of parents report that their children have been made to feel bad at school about what or how much they were eating. These behaviors include inappropriate dieting, excessive worry about fat in foods, being preoccupied with food content or labels, refusing family meals and having too much physical activity.

Reports from Australia also indicate a high increase in eating disorders since anti-obesity campaigns began. A Medical Director of Mental Health at Australia’s Austin Hospital said he believed some of the 9 and 10-year-olds being treated for anorexia were becoming ill from “the panic” created by anti-obesity campaigns.

A substantial body of evidence from the eating disorder literature demonstrates that when important agents in children’s social environment (e.g. parents and peers) endorse a preference for thinness and place an importance on weight control, this contributes to body dissatisfaction, dieting, low self-esteem and weight bias among children and adolescents.  Studies show that body dissatisfaction and weight-related teasing are associated with binge eating and other eating disordered behaviors, lower levels of physical activity and increased weight gain over time.

The Solution

The focus of future “obesity interventions” should focus on health, not weight. Future interventions should focus not only on providing opportunities for appropriate levels of physical activity and healthy eating, but also specifically seek to promote self-esteem, body satisfaction, and respect for body size diversity.

The implementation of many anti-obesity programs is causing concern in that they may be promoting some negative consequences like an increase in eating disorders.  We urge any company, agency or department who is offering such a program to incorporate the latest scientific evidence and best clinical practices developed by the Academy for Eating Disorders:

  • Studies show that body dissatisfaction and weight-related teasing are associated with binge eating and other eating disordered behaviors, lower levels of physical activity, and increased weight gain over time. Therefore, constructing a social environment where all children are supported in feeling good about their bodies is essential to promoting health in youth.
  • Programs should be careful not to use language that has implicit or explicit stigmatizing anti-fat messages, like “fat is bad,” “fat children are not healthy,” or “fat people eat too much.” Interventions should focus not only on providing opportunities for appropriate levels of physical activity and healthy eating, but also promote self-esteem, body satisfaction, and respect for body size diversity.
  • There is ample scientific evidence that an environment focusing on weight and thinness is a risk factor for eating disorders.  Moreover, a reliance on BMI as a proxy for health leads to many “false positive” assumptions of illness in healthy heavier children, and many overlooked problems of disordered eating and harmful weight loss practices in average-weight children.
  • Interventions should be health-centered, not weight-focused, as weight is not a behavior and therefore not an appropriate target for behavior modification.  Children across the weight spectrum will benefit from a healthier diet, and more opportunities for physical activity. Therefore, interventions should be weight-neutral, i.e. aim to increase healthy living at any size rather than promoting specific goals for weight change.
The EDC has communicated our concerns directly to Michelle Obama urging her to change her anti-obesity (Let’s Move) Campaign.  We also worked with Congressman Hastings and 34 additional Members of Congress who sent a letter to Michelle Obama in 2010 asking her to expand the Let’s Move Campaign to focus on health more broadly and address the prevention of eating disorders.  Two years later, after no action on the part of Michelle Obama’s office and new evidence pointing to the harm created by anti-obesity initiatives in the schools, EDC worked with 22 Members of Congress on a follow-up letter sent in June of 2012. We also gained support from more than 40 organizations who endorsed this Congressional effort.

What You Can Do

Challenge anti-obesity initiatives and urge them to stop their potentially harmful efforts or change their focus.  Use this article as support for your efforts.

Join the nearly 100 other advocates that come to EDC National Lobby Days we hold twice a year and share your stories and perspectives.  For more information go to eatingdisorderscoalition.org.

Holding Insurance Companies Accountable


In early 2011 the EDC initiated the Hold Insurance Companies Accountable Campaign (HICA) in response to continued and consistent stonewalling tactics and inappropriate denials by insurance companies for life saving eating disorders treatment.  Consequences of not receiving necessary health insurance coverage include financial ruin for families paying out of pocket, a lack of life saving care, which leads to the worsening of symptoms and in some cases death.  Anorexia has the highest mortality rate of all mental illnesses, upwards of 20%.  Individuals with anorexia nervosa are 11 times more likely to die than their peers and they are 57 times more likely to die of suicide. Mortality rates are also higher for people with bulimia nervosa (3.9%), and eating disorders not otherwise specified (5.2%).

According to the nationally recognized law firm of Patton Boggs, the mental health parity statute clearly states that limits on the scope and duration of treatment must be applied no more restrictively in the mental health benefit than in the medical/surgical benefit. The statute defines treatment limitations as “limits on the frequency of treatment, number of visits, days of coverage, or other similar limits on the scope or duration of treatment.”

Not complying with the parity regulations is a calculated effort to avoid costs at the expense of people’s health and lives.  Treatment should be determined by the treating professional based on severity and type of illness, rather than what is arbitrarily allowed by an individual’s insurance company. Through legal and political advocacy, the EDC’s Hold Insurance Companies Accountable Campaign is working with specialized attorneys and experts in the field to put an end to such discriminatory and deadly practices.

What You Can Do

1. Write to your insurance commissioner. Insurance commissioners have the responsibility of protecting the interests of the consumer. They need to hear from those who are not receiving necessary treatment because insurance companies refuse to pay. The more people who write, the bigger the impact. To write your commissioner go to eatingdisorderscoalition.org and click on the HICA link.

2. Call your Members of Congress. A key role of legislators is to take care of constituent concerns. In fact every Member of Congress has staff hired specifically to do so. If your insurance company is stonewalling care, legislators need to know and may be able to help. To look up your legislators for the Senate go to senate.gov and for the House go to house.gov.

Thursday, July 12, 2012

Update from EDC in DC

Quick update from Washington, DC

EDC just left Capitol Hill where we met with key administrators for parity and the implementation of ACA, Pam Hyde from SAMHSA and Sherry Glied with HHS and again raised the issue of eating disorders and continuous denial of residential and other eating disorders treatment. They told me that they appreciate us consistently raising this issue and that SAMHSA and HHS are putting a lot of resources into researching the trends of denying residential both pre and post parity. I spoke with Pam Hyde and HHS leaders on how we can work with them to remedy this issue.

We will keep up the pressure until we see results!

Thursday, June 28, 2012

The Eating Disorders Coalition for Research, Policy & Action (EDC) Applauds the Supreme Court's Ruling to Uphold the Affordable Care Act.



This is a huge victory for millions of Americans needing health care coverage for eating disorders. Unfortunately too many people seeking treatment for eating disorders today are denied life saving care due to stonewalling tactics and inappropriate denials by health insurance companies. With the passage of the ACA and a number of key provisions such as the law's guarantee of coverage for people with pre-existing conditions and the requirement to cover mental health as an essential health benefit, some of the widespread discriminatory practices by insurance companies against people with eating disorders may come to an end. The ACA is an important step in holding insurance companies accountable. The EDC will continue our aggressive efforts to influence the implementation of the ACA at the Federal level so that people with eating disorders receive the treatment they need and deserve.

What the EDC has done?
-Attended regional forums with the Department of Health and Human Services (HHS) with specific recommendations to ensure treatment for eating disorders is part of the ACA.
-Submitted comments to HHS during the open comment periods with specific recommendations to ensure treatment for eating disorders is part of the ACA.

-Met more than once with key officials at HHS with specific recommendations to ensure treatment for eating disorders is part of the ACA.


What can you do?
Contact your state legislators and/or ACA implementation committee to learn how you can be part of the discussions and influence the process. Be a voice for eating disorders treatment and make sure that gets included in each state's implementation.

Wednesday, June 27, 2012

EDC Attends Mental Health Parity Field Hearing in Maryland

EDC Attends Mental Health Parity Field Hearing in Maryland with former Congressmen Kennedy & Ramstad

The event was standing room only and attended by approximately 250 people.  The forum was chaired by Rep. Chris Van Hollen (D-MD) and attended by former Reps. Patrick Kennedy and Jim Ramstad and current Members Moran (D-VA) and Tonko (D-NY).

Three panels of witnesses made a strong case for the need for full and robust implementation and enforcement of MHPAEA.  Witnessed included:

PANEL ONE
  • Dr. Paul Berger
  • Ann Price
  • Adrian & Diana Veseth-Nelson
PANEL TWO
  • Dr. Josh Sharfstein, Secretary of the Maryland Department of Health and Mental Hygiene
  • John O’Brien, Director of Health Care and Insurance, Office of Personnel Management
  • Brenda Wilson, Associate Commissioner, Life and Health Section, Maryland Insurance Administration
  • Dr. Raymond Crowel, Chief of Behavioral Health and Crisis Services, Montgomery Country Department of Health and Human Services

PANEL THREE
  • Dr. Steve Daviss, Chair of Psychiatry, Baltimore Washington Medical Center
  • Ellen Weber, Professor of Law, University of Maryland Francis King Carey School of Law Drug Policy Clinic
First Panel
During the first panel, Dr. Berger, a dentist in recovery from addiction, and Ann Price, a career flight attendant with PTSD and in long-term recovery from addiction, talked about their struggles trying to get their insurers to pay for their treatment.  

Adrian and Diana Veseth-Nelson represented the veteran and military family voice; Captain Veseth-Nelson was medically retired from the Army last year after being diagnosed with severe PTSD following his second tour in Iraq.  He and his wife Diana talked about the stigma associated with mental illness and the need for robust treatment for both veterans and their family members. 

Second Panel
The second panel included local, state and federal government witnesses. First, Dr. Sharfstein, Secretary of the Maryland Department of Health and Mental Hygiene, spoke about the importance of the Affordable Care Act and said Maryland is committed to its full implementation unless stopped by the Supreme Court or some other body. 

Following Dr. Sharfstein, John O’Brien with the Office of Personnel Management talked about parity in the Federal Employee Benefits Program (FEHBP).  As you all know, President Clinton signed an executive order requiring parity for FEHBP plans.  While FEHBP does not have to comply with MHPAEA, following the law’s enactment, FEHBP required its carriers to comply with the stronger protections (such as out-of-work parity) in MHAPAEA than in the existing FEHBP parity requirements.  During the question and answer period following the panel’s statements, Rep. Kennedy asked Mr. O’Brien about recourse FEHBP takes with plans who are denying large numbers of claims and he replied that during the contract renewal process, they had made it clear to certain plans they were unhappy. 

Brenda Wilson with the Maryland Insurance Administration talked about Maryland’s history with parity and the state’s efforts to comply with MHPAEA.  During the question and answer period, Rep. Kennedy asked her why there had only been 30 complaints filed with her office in 2011 related to mental health and addiction treatment.  She replied that they do everything they can go get the word out that patients have a right to appeal, but she suspected the nature of the illnesses make it very difficult for patients and family members to go through the arduous appeals process.

Dr. Raymond Crowel with the Montgomery Country Department of Health and Human Services spoke about how non-quantitative treatment limits in Medicaid often limit access to care and he emphasized the need for requiring outcomes reporting to ensure patients are getting the care they need. 

Third Panel
On the third panel, Dr. Daviss with Baltimore Washington Medical Center echoed Dr. Crowel’s comments that non-quantitative treatment limits (NQTLs) often limit access to care. He talked about how obtaining pre-authorization for patients he sees in the emergency department who need to be admitted for psychiatric treatment is significantly more difficult than for patients his colleagues admit for medical/surgical treatment.  He also spoke about lack of providers in networks, a phenomenon called “phantom networks” where plans lists providers in their networks who are not really available to treat patients. 

Ellen Weber with the University of Maryland spoke about the need for a final rule that addresses the important outstanding issues of scope of service, NQTLs and application of MHPAEA to Medicaid managed care plans. Professor Weber talked about how it is difficult for patients to appeal because MHPAEA’s rules are complex, the plans control the information and patients and providers have limited capacity to spend the significant time required to file an appeal.

I thanked both Kennedy and Ramstad for their continued passionate efforts to make sure people with eating disorders receive the life saving care they need.  Be sure to attend the hearings near you. For schedule and information: http://parityispersonal.org/Parity_Field_Hearings

Monday, June 18, 2012

EDC Wins Big for Eating Disorders Research

Last week, the Senate Appropriations Committee agreed to FY 2013 funding for federally financed health research.  Under the leadership of the Eating Disorders Coalition for Research, Policy and Action (EDC), the funding bill contains a congressional directive urging the National Institute of Health (NIH) to expand, intensify, and coordinate its research on eating disorders and to examine the possibility of creating collaborative consortia on eating disorders research. This initiative holds out the prospect of attaining two key EDC goals: the first is greater attention to and the coordination of eating disorders research across nine National Institutes of Health who possess active research portfolios in this area; the second is increased support for federal Centers of Excellence in eating disorders research at academic medical centers and universities in the United States.  The EDC drew inspiration for this breakthrough initiative from the research sections of the House and Senate Federal Response to Eliminate Eating Disorders Act (the FREED Act). 

In short, the EDC is committed to an aggressive strategy intended to achieve key policy goals in Washington, D.C. through available legislative and regulatory vehicles.  The EDC has excellent relationships with senior officials at NIMH who we anticipate will be key players in implementing this critical congressional initiative.

Wednesday, June 13, 2012

Thank you 1Mind4Research

 The EDC is glad to be connected with One Mind for Research. Here are some highlights from their 1st Annual Meeting of the One Mind for Research Campaign.


Today, One Mind for Research issued a release to announce the highlights from its 1st Annual Meeting of the One Mind for Research Campaign: Curing Brain Disease. The energy and emotion of the conference, which was focused on advancing brain research, anti-stigma advocacy and mental health policy are captured in video highlights. A complete collection of videos from the meeting will be available later this month.
 
 

 
1st Annual Meeting of the One Mind for Research Campaign: Curing Brain Disease

June 6, 2012, Rutherford, CA – One Mind for Research completed its 1st Annual Meeting of the One Mind for Research Campaign: Curing Brain Disease on May 23-25, 2012 at the University of California, Los Angeles, firmly establishing itself as a leader in brain research, anti-stigma advocacy and mental health policy.

The conference was welcomed by Los Angeles Mayor Antonio Villaraigosa and UCLA Chancellor Gene Block and featured over 350 of the world’s leading scientists and researchers in a discussion of how to accelerate the next generation of innovative neuroscience discoveries. A video recap of the conference is available online at www.1mind4research.org beginning today. Complete videos of all of the presentations during the three-day event will be available soon.

The 2nd Annual One Mind for Research meeting will take place at Johns Hopkins University in Baltimore, Maryland. Tentative dates are May 21 -23, 2013.

Highlights of the 2012 conference, among many, included FasterCures chairman Michael Milken’s presentation on the bioscience revolution, noting that the cost of sequencing a genome has been reduced from millions of dollars to $1000, advancing the opportunities for genetic therapies.

Robert Klein, president of Klein Financial Corporation and author of California Proposition 71, the California Stem Cell and Cures $3 billion ballot initiative, presented an inspirational outline on the opportunities for innovative global research funding.

Michael Thompson of PricewaterhouseCoopers presented initial estimates of a study funded by One Mind on the costs of brain disease in the United States. Preliminary studies find costs approaching $1 trillion in 2012 alone. The final report is expected within weeks.

Patrick Kennedy inspired the attendees with his call to action for the Healthcare Parity Campaign and Emmy, Golden Globe and Tony Award winning actress Glenn Close chaired a panel on the science of stigma.

Among the keynote moments of the 2012 meeting was the presentation of the One Mind for Research TBI/PTS Knowledge Integration Network by Dr. Geoff Manley, UCSF. The TBI/PTS KIN is a digital environment for multiple-source data sharing, with open analysis tools, and tracking systems for working with complex data for those involved in the areas of TBI and PTS. This system will foster an open science approach among academia, industry, non-profits and governments, to remove the barriers to effective scientific and clinical research that will increase collaboration, and speed diagnosis and treatment on an unprecedented level.

Emphasizing the dire need for quick and efficient research and treatment of TBI/PTS was Sergeant First Class Victor L. Medina and his wife, Roxana Delgado, who gave a touching account of his experiences dealing with this critical issue facing our returning veterans.

“During the past year, we have made enormous strides in building our team of partners to take on this emerging national and international challenge,” stated One Mind CEO General Peter W. Chiarelli, U.S. Army (Retired). “This conference brings together an international coalition of renowned neuroscientists, policy makers and advocates, all striving to end brain-related illnesses in our lifetime.”

“The United States is facing a growing burden as a result of brain diseases,” added Garen Staglin, co-founder of One Mind for Research. “At this 1st annual conference we have reported on our progress toward cures and presented for the first time an independent study of what it costs our country in economic terms. We hope our findings will stimulate new donors and investment for research.”

One Mind for Research defined the first global scientific roadmap required for curing diseases of the brain within 10 years at last year’s launch conference held in Boston. From that roadmap, and in conjunction with its partners, One Mind is introducing a major program that address traumatic brain injury (TBI) and post-traumatic stress (PTS) that will be the first of many aimed at One Mind’s vision of a world free of brain disease. These efforts are prototype programs to dramatically improve treatments for TBI and PTS patients while also establishing broad collaborations within the neuroscience community.  Other projects are underway for Multiple Sclerosis (MS) and Alzheimer’s disease.

For more information on One Mind for Research, and the 1st Annual Meeting of the One Mind for Research Campaign: Curing Brain Disease, please visit www.1mind4research.org.

About One Mind for Research
One Mind for Research is an independent, non-profit organization that is committed to curing diseases of the brain and eliminating the stigma and discrimination they cause. Through collaboration with partners in science, advocacy and corporations, One Mind for Research is working to advance a 10-year plan to cure the diseases of the brain by creating change in the way scientists, health care professionals, NGO and government partners think about and conduct scientific and translational research, and by advancing mental health related public policy.

About Brain Disease
Brain diseases are the number 1 cause of adult disability globally, afflicting, in some form, 1 out of every 3 people. For example, among the psychiatric diseases (i.e. mental illnesses), major depressive disorder leads in prevalence, disabling about 5% of the population to some degree in any given year. Among veterans returning stateside from service in Iraq, 300,000 are estimated to have TBI and/or PTS, adding to the total estimate of 1.5 million Americans living with these diseases. Beyond the emotional pain endured by these individuals and their families, the total lifetime treatment cost for these individuals calculates to about $3.3 trillion. This and the cost of dementia care for our nations’ growing elder population ($400 billion annually now, to triple by 2050) will soon prove beyond the ability of the U.S. economy to sustain—unless neuroscience starts an emergency pace, right now. At a time of decreasing government research funding and pharmaceutical industry’s widespread withdrawal from psychiatric drug R&D, this cause needs public support now to develop the preventions and cures that will protect the brain health of people worldwide.


Media Contact:
Fuller & Sander Communications
Tom Fuller, 707-253-0868
tom@fullerandsander.com,
Monty Sander, 707-253-8503
monty@fullerandsander.com

Thursday, June 7, 2012

Congratulations to Lisa Kantor

The Eating Disorders Coalition extends our deepest gratitude to Lisa Kantor and her team for fighting this battle until justice was served! On behalf of all those affected by eating disorders, we thank you and congratulate you on this victory!


Kantor & Kantor, LLP Announces Ruling That Health Plans Must Cover Residential Treatment for Eating Disorders

Ninth Circuit Decision Clarifies Insurer Obligations Under California Mental Health Parity Act

LOS ANGELES, June 5, 2012 /PRNewswire via COMTEX/ 

Kantor & Kantor, LLP announced today that the Ninth U.S. Circuit Court of Appeals has denied an insurer's request for rehearing of a significant victory for people suffering from nine enumerated mental health conditions - eating disorders in particular. The Court confirmed its August 26, 2011 decision that the California Mental Health Parity Act requires health plans to provide coverage of "all medically necessary treatment" for "severe mental illnesses" under "the same financial terms as those applied to physical illnesses." In the latest decision, Harlick v. Blue Shield of California, the court held that health plans in California are obligated to pay for residential treatment for people with eating disorders even if the policy excludes residential treatment.

"We appreciate that the Court not only denied Blue Shield's request for rehearing and rehearing en banc but also issued a new opinion with added clarity about the broad scope of California's Mental Health Parity Act," said Lisa Kantor of Kantor & Kantor, LLP, who represents the plaintiff Jeanene Harlick. "The majority opinion takes a common sense approach in interpreting the Act and accomplishes the legislative purpose of mandating full coverage for severe mental illnesses."
Jeanene Harlick has suffered from anorexia for more than 20 years. In 2006, her physicians recommended treatment at a facility qualified to treat eating disorders. Although Blue Shield agreed to pay for the treatment, after 10 days it denied coverage, saying the plan did not cover residential treatment even though the insurer agreed the treatment was medically necessary

In July 2008, Kantor sued Blue Shield on Harlick's behalf, arguing among other things, that Blue Shield's health plan violated the California Mental Health Parity Act. Blue Shield argued that it had discretion to deny coverage, and the district court agreed. Harlick appealed, and the Ninth Circuit ruled in her favor. Blue Shield requested a rehearing and a rehearing en banc (before all judges of the Ninth Circuit). The briefing on these requests was completed in November 2011. The California Department of Insurance filed a Brief of Amicus Curiae (friend of the Court), opposing Blue Shield's requests and supporting Harlick's position. The Department of Managed Healthcare did not file a similar brief in the matter, despite its responsibility for regulating health care service plans in California. 

For more information about Lisa Kantor and legal assistance for eating disorders, follow this link: http://www.kantorlaw.net/Areas_of_Practice/Eating_Disorders.aspx . 





About Kantor & Kantor, LLP
Kantor & Kantor is one of the largest law firms in the country exclusively representing plaintiffs who have been denied insurance benefits under life, health, disability and long-term care policies. The firm has extensive experience with the complex appeals process and federal court litigation of ERISA matters, as well as the handling of Insurance Bad Faith matters. 

For more information, log on to www.kantorlaw.net , call (800) 446-7529, or follow the firm at www.californiainsurancelawyerblog.com .
SOURCE Kantor & Kantor, LLP
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